I have a baby update for you all. We found out we are having a girl and her name is Gracie Ann Kukis. We picked Gracie because we felt she needed a name that meant something and it means God's favor. My mother in law looked up Ann, which is my middle name, and it means grace and favor. So as my mother in law said, "this baby girl is having the grace and favor of God poured over her in the declaration of her name."
We had an ultrasound on Tuesday, September 13 and it went as good as it can be with the circumstances. Gracie is a little bit bigger, so as sad it was, Corey and I got to see more of the trisomy 18 markers. Our poor little girl. The ultrasound tech was very sweet in explaining what we were seeing and told us to tell her to shut up if we needed her too. I am okay with knowing what is going on, it helps me to not live in denial of Gracie's prognosis. Gracie was moving around a lot in there and we got to see her swallow. We met with our doctor right after the ultrasound, which was the first time meeting with her since the diagnoses. Our doctor said it is looking like there won't be much they can do for our little one and will focus on me and making sure I am okay through all this. I have been doing some research and joined a community of other mothers who have gone through what we are and it sounds like most of them decide to have their baby with them for as long as they get to rather than having them hooked up to a bunch of machines and surgeries that they most likely won't survive. Our doctor is very positive that I will not go to term, so it is unknown when I will go into labor. I do believe God is in control and that His will be done rather that is giving us lots of time with our Gracie or taking her home to be with Him. Corey and I have a difficult road ahead of us. Prayers needed for Gracie and for us strength, courage, peace and wisdom! Thank you so much already for all the prayers thus far and encouraging words. It is greatly appreciated!!! I will begin keeping everyone updated through this blog.
Emily I love that you started a blog....you and Corey are amazing . God will show favor over Gracie, His ways are higher than our ways, His thoughts are higher than our thoughts. Stay strong.
ReplyDeleteThank you, sis!
ReplyDeleteEmily I am praying for you all. I have been doing some research on this since you posted your note just because I had never heard of it. I was really hoping that it would be a girl and most articles say that girls do better with this. I keep praying that Gracie will be a great blessing to all those lives she touches. I miss you my friend and I sort of know what you are going through. It is very tough but I pray that God will use this for his glory and that all of you will be blessed. You are in my prayers daily.
ReplyDeleteOur prayers change over time..my prayer is that you have a window of time to connect with Gracie Ann. To feel her kick, move, is she a busy girl or a calm mover like Corey was. Is she active in the day time or is she a night person.. these are the things you will keep in your heart. We get to know her through you.. thank you for the blog. you are brave and wonderful parents..
ReplyDeleteEm,
ReplyDeleteWe all love Gracie Ann already and are grateful for the days God is granting you with her. God's grace is evident in you and Corey's life as well in the way that you are faithfully walking through this heartache, trusting in His providences, and that He is in perfect control. Love you.- aunty kris